I took Jesse in for a follow-up visit with his surgeon on October 5th. I really thought that he would look him over and say, "We'll see you in 6 months." And it seemed that would be the case at first.
When the doctor's fellow came in, she hinted as much. She said everything looked great. I asked about all the lumps and bumps and soft spots, and she assured me they were all normal and that it head would probably just get lumpier as time goes on. But then the surgeon came in. He took a look at Jesse and said that he wanted him to be put in a helmet. The surgeon said we needed to correct the flat spot in the back. Then as he was walking out of the room, he said if the helmet didn't work that Jesse may need another surgery. Really? We're not even 2 months post op and he's already talking about another surgery? I thought I was going to be sick.
Jesse had a consultation with Cranial Tech on October 10th. Jesse has moderate brachycephaly and right occipital flatness. He also continues to have bi-temporal narrowing from the metopic cranio. I'm really starting to wonder why that wasn't fixed during surgery. The surgeons did say they were doing a FOA, which I'm pretty sure means reconstruction of the brow bone and temporal areas. The DOC Band therapist said this is one of the hardest areas to fix with a helmet. I'm going to have to ask the surgeon about it again. Maybe there's a reason for it, I don't know. I did mention it at the appointment on the 5th, and the fellow said that it could broaden on it's own, but if not he'll need a revision.
Cranial Technologies is working with the insurance company for pre-authorization. I should be getting a call from them in the next couple days to set up an appointment for the 3D scan.


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