Monday, January 23, 2012

Plan for CVR/FOA #2


First, I have to say that I am so much more at peace now that I've met with the surgeons and have a plan. I was a little confused at first because they did have different opinions, but I know in my heart what Jesse needs.

So we are going to have another CVR/FOA with Dr. Fearon. I want to make sure there is plenty of time for Jesse's bones to have healed from the first surgery, but I don't want to wait so long that Jesse will be at an age that he will remember it. We could have the surgery as early as this May, but I've decided to wait until Jesse is almost 2, so I'm going to see about having it done in Jan 2013, the month before Jesse's 2nd birthday. I want him to be recovered enough so that he can enjoy his 2nd birthday. I just don't want him to remember any of this. That has been one of the two things that I've been thankful for in all this... that it is fixable and that he wouldn't remember it.

I know that Dr. Fearon's re-op rate is very low at about 2%. I also don't believe that Jesse reverted so much as he was just way too under corrected in the first place (I seriously felt something was not right when I first saw him in recovery after the surgery but blew it off as post-op paranoia). I haven't seen a lot of change for the better or worse, so I'm not as worried about reversion, especially since Dr. Fearon over corrects to compensate for that possibility.

So that's the plan and I feel really good about it. I'm finally feeling some sense of peace for the first time since Jesse's first surgery. As much as is possible when facing a surgery for your little one, but it's all I could ask for right now.

No comments: